CP Collaborative members, CP NOW and the Cerebral Palsy Research Network (CPRN) were awarded a PCORI Grant in late December to host a conference to entitled “Setting a Patient-Centered Research Agenda for Cerebral Palsy” (or Research CP for short). The conference, which will be held in Chicago in mid June 2017, is preceded by an educational webinar series on research, quality, registries and patient-centered research outcomes so that everyone at the conference has a common language.
The webinars and conference will be open to the public virtually and the in person workshop will be open to 35 people (including stipends for the community participants). The workshop will be approximately 20 people from the community and 15 people from the provider side.
Collaborative members are helping to promote this opportunity to shape a patient-centered research agenda with their constituents.