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Leadership

Jennifer is the creator and coordinator of the Cerebral Palsy Collaborative, a concept that came to her during the 2014 NIH State-of-Science and Treatment Decisions in Cerebral Palsy workshop. At the time it was clear that the NIH, the CDC and the general public were in need of a unified voice from the CP community for research, advocacy, education (dissemination of information to those with CP and those who care for them) and awareness.

Prior to having her son Bower, who has CP and visual impairment, Jennifer was a case manager for children with disabilities in therapeutic foster care. She represented them in court, at school, through transitions to adult care, in obtaining Medicaid waivers, and ensuring that their foster families followed their plan of care. Jennifer also created Adventure Respite, a therapeutic respite program that took the children in foster care on weekend camping trips. The program effectively used Medicaid respite finds while giving the children the opportunity to have memorable experiences. Adventure Respite was recognized nationally for its innovative approach to respite care and thrives today serving over 400 children a month. Jennifer was awarded Social Service worker of the year for the State of Georgia for the creation of this program.

Jennifer holds an M.S. in Therapeutic Recreation from University of Florida’s College of Health and Human Performance and has a post-graduate certification in Conductive Education for cerebral palsy from Governors State University. She is a board member of the CP NOW Foundation, and is a member of Children’s Hospital of New Orleans Family Advisory Council and the LSU Human Development Center Consumer Advisory Council.